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Infantile Refsum's Disease

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Manager: systemrun
This is a ring for members of the Infantile Refsum's Disease E-mail List and other disability pages are also welcome to join.
 

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   Kailee's Play Room Preview Go
Kailee is a bright happy little girl. You would not know something is wrong with her. Yet she was born with a rare illness of the ear that causes her great pain and hearing loss everyday of her life. Come read this story of this 2 year old angel.
   Capable Corners Preview Go
Capable Corners is for people with ALL disabilities and diseases to gain support! Please stop by
   Rebekah Jayne Grant - NALD a New Zealand Connection Preview Go
Rebekah Jayne Grant, our special little girl who has the only known case of NALD in New Zealand


   Rebekah Jayne Grant - NALD a New Zealand Connection Preview Go
Rebekah Jayne Grant, our special little girl who has the only known case of NALD in New Zealand






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