Parents & Carers of Omphalocele's


This is a webring for Parents, Grandparents, siblings and friends of children born with an Omphalocele, a birth defect in which bowel, liver, and possibly other organs form outside of the abdomen in a sac due to a defect in the muscle of the abdominal wall. Gastroschisis is a similar birth defect, but the sac is not present. Sites related to gastroschisis are also welcomed. Do please join us and invite others, but only if your site is related to the topic. The more links - the more traffic - the more useful and effective this ring is likely to become. (No porn or 'hate' sites please). Lionel Hartley, PhD - Ring Manager
Category: Children's


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Jim and Beth Mause document their story about their baby with an omphalocele.

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Luna was born at 36 weeks with a large omphalocele. This website includes pictures and a description of the precedures used to treat Luna's omphalocele.

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Home page about our Omphalocele Baby or O Baby Lorena. Complete with updates and pictures of Lorena's Story and recovery. Also more about our family.

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A fun FREE quilting club. Talk with members about life and projects. Free patterns, charity quilting, monthly fat quarter bingo, quilt block lottos, quilt block swaps, share and get tips and advise. Come make some new friends!!

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Very brave baby with giant O in the Netherlands (remember Frummeltje?). Lived only 101 days.

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"O" baby in Rotterdam, the Netherlands. Diary from 13 weeks of gestation until now.

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Jessica was born almost 3 months premature with Gastroschisis in 1982. The doctors said she probably wasn't going to live - she proved them wrong! Jessica is all grown up and very healthy!

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Zack was born with a giant omphalocele. His care has been the conservative "paint and wait" approach. This site's purpose it to share information about treating an omphalocele without doing surgery at birth.

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